Mapping the Real-World impact of a complex genetic disorder
NCT ID NCT07088991
Summary
This study aims to gather detailed information about adults living with neurofibromatosis type 1 (NF1) in Russia. Researchers will observe 200 patients in their regular care settings to document their symptoms, tumor characteristics, overall health, and quality of life. The goal is to better understand how this genetic condition affects people in real life, which may help improve future care.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Research Site
RECRUITINGArkhangelsk, Russia
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Research Site
RECRUITINGChelyabinsk, Russia
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Research Site
RECRUITINGKrasnoyarsk, Russia
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Research Site
RECRUITINGMoscow, Russia
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Research Site
RECRUITINGNizhny Novgorod, Russia
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Research Site
RECRUITINGNovosibirsk, Russia
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Research Site
RECRUITINGSaint-Peretsburg, Russia
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Research Site
RECRUITINGSamara, Russia
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Research Site
RECRUITINGTomsk, Russia
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Research Site
RECRUITINGUfa, Russia
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Research Site
RECRUITINGYekaterinburg, Russia
Conditions
Explore the condition pages connected to this study.