Scientists launch global registry to track rare Birthmark-Brain link
NCT ID NCT04548817
Summary
This study is creating a global registry to collect health information from people with large, dark birthmarks present at birth (LCMN) or a related condition where similar cells are found in the brain (NCM). The goal is to gather data on how the disease progresses and what treatments people receive during their regular care. This information will help doctors better understand these rare conditions.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Boston Children's Hospital (Data Analysis Only)
NOT_YET_RECRUITINGBoston, Massachusetts, 02115, United States
Contact Phone: •••-•••-••••
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Memorial Sloan Kettering Cancer Center (All Protocol Activities)
RECRUITINGNew York, New York, 10065, United States
Contact Phone: •••-•••-••••
Conditions
Explore the condition pages connected to this study.