Rare muscle disease study aims to pave way for future treatments
NCT ID NCT07201636
First seen Nov 01, 2025 · Last updated May 09, 2026 · Updated 25 times
Summary
This study follows up to 10 people with nemaline myopathy, a rare muscle disorder, for three years. Researchers will track changes in movement, breathing, and quality of life during routine hospital visits. The goal is to learn more about how the disease progresses and to identify better ways to measure it in future clinical trials.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Centre de référence des maladies neuromusculaire, Centre Hospitalier Régional de la Citadelle
Liège, 4000, Belgium
Contact
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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