New registry tracks rare skin and brain condition to unlock better care
NCT ID NCT04548817
First seen Nov 01, 2025 · Last updated May 23, 2026 · Updated 30 times
Summary
This study is a registry that collects information from people with large dark skin patches present at birth (LCMN) or a rare brain condition called neurocutaneous melanocytosis (NCM). Researchers aim to gather data worldwide on how these conditions are treated and how they progress over time. No new treatments are tested; the goal is to learn from patients' regular medical care to improve future understanding and management.
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the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Boston Children's Hospital (Data Analysis Only)
NOT_YET_RECRUITINGBoston, Massachusetts, 02115, United States
Contact Phone: •••-•••-••••
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Memorial Sloan Kettering Cancer Center (All Protocol Activities)
RECRUITINGNew York, New York, 10065, United States
Contact Phone: •••-•••-••••
Conditions
Explore the condition pages connected to this study.