New study tracks how vision fades in rare genetic disorder
NCT ID NCT07278843
First seen Jan 05, 2026 · Last updated May 14, 2026 · Updated 22 times
Summary
This study follows 60 people with Usher syndrome type 1B, a rare genetic condition that causes deafness and progressive blindness. Researchers will measure how vision changes over time using standard eye tests and new virtual reality tools. The goal is to better understand the disease and validate tests that could be used in future treatment trials.
Disclaimer
Read more
Show less
This is a summary of
the original study
.
Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for USHER SYNDROME are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
Centre National d'Ophtalmologie des Quinze-Vingts
RECRUITINGParis, Île-de-France Region, 75012, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.