Patients take the mic: global study asks what myositis research really matters
NCT ID NCT07374107
Summary
This study aims to understand what research topics are most important to people living with rare inflammatory muscle diseases called myositis. Researchers will gather opinions from about 700 patients and caregivers worldwide through online surveys, stories, and group discussions. The goal is to create a list of patient-driven research priorities to guide future studies and how research money is spent.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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MIHRA Foundation - This is a GLOBAL STUDY
RECRUITINGNew Orleans, Louisiana, 70130, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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