New study aims to map Real-World care for rare bone marrow disease
NCT ID NCT06976918
First seen Jan 28, 2026 · Last updated May 15, 2026 · Updated 17 times
Summary
This study is a registry that will follow about 200 people in Germany who have myelofibrosis (a rare bone marrow disorder) and anemia. It does not test a new treatment but instead collects information on which therapies patients receive, how their blood counts and spleen size respond, and how they feel. The goal is to better understand current care and outcomes for this condition.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Multiple sites all over Germany
RECRUITINGMultiple Locations, Germany
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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