Massive study launches to map the course of rare muscle diseases

NCT ID NCT05989620

Summary

This study aims to better understand how several rare types of muscular dystrophy progress over time. Researchers will observe up to 1,000 participants for two years, tracking their strength, movement, and quality of life using standard tests and questionnaires. The goal is to gather detailed information to help design better future clinical trials for new treatments.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Email: •••••@•••••

Locations

  • Virginia Commonwealth University

    RECRUITING

    Richmond, Virginia, 23298, United States

    Contact Email: •••••@•••••

    Contact

Conditions

Explore the condition pages connected to this study.