Patients help design First-Ever exercise plan for rare disease
NCT ID NCT07449143
Summary
This study aims to design a physical activity and sitting-time reduction program specifically for adults with mucopolysaccharidosis (MPS), a rare genetic disorder. Researchers will work directly with 50 UK-based adults who have MPS, their families, and their doctors to understand their needs and preferences. The goal is to create a future program that could improve mental health and quality of life without using medication.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Brunel University London
London, UB8 3PH, United Kingdom
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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