New study aims to sharpen tools for pediatric muscle disease trials

NCT ID NCT06847282

First seen Feb 28, 2026 · Last updated May 07, 2026 · Updated 8 times

Summary

This study is for children aged 5 to 17 with a confirmed form of muscular dystrophy called FSHD. The main goal is to check if certain tests of movement and muscle strength are reliable and useful for future clinical trials. Researchers will also use MRI scans to measure muscle health. The study does not test a new treatment, but aims to improve how we measure the disease in children.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Duke University

    RECRUITING

    Durham, North Carolina, 27708, United States

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Email: •••••@•••••

  • Murdoch Children's Research Institute

    RECRUITING

    Melbourne, Australia

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Stanford University

    NOT_YET_RECRUITING

    Palo Alto, California, 94304, United States

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • University of Iowa

    NOT_YET_RECRUITING

    Iowa City, Iowa, 52242, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

  • University of Kansas Medical Center

    RECRUITING

    Kansas City, Kansas, 66160, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • University of Rochester

    RECRUITING

    Rochester, New York, 14642, United States

    Contact

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • University of Utah

    NOT_YET_RECRUITING

    Salt Lake City, Utah, 84112, United States

    Contact Email: •••••@•••••

    Contact

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.