Sensors track tiny movements in SMA babies on gene therapy
NCT ID NCT04833348
First seen Nov 01, 2025 · Last updated Jun 20, 2026 · Updated 28 times
Summary
This study follows 35 infants with spinal muscular atrophy (SMA) who are receiving innovative therapies like gene therapy. Researchers use wearable motion sensors to measure how well the babies move their arms and legs over two years. The goal is to develop a more accurate way to track motor function improvements in these young patients.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Hôpital Necker-Enfants Malades
Paris, 75015, France
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
What this could lead to
If successful, this could provide a more precise way to track motor improvements in infants with SMA, helping doctors better assess treatment effects.
What could go wrong
This is a small observational study (35 infants) focused on measurement methods, not testing a new treatment. The findings may not apply to all SMA patients or lead directly to better outcomes.
Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.