New registry aims to map treatment landscape for rare lung cancer mutation

NCT ID NCT05376891

Recruiting now Knowledge-focused Sponsor: EMD Serono Research & Development Institute, Inc. Source: ClinicalTrials.gov ↗

First seen Jun 24, 2026 · Last updated Jul 14, 2026 · Updated 3 times

Summary

This study is a disease registry that will follow about 700 people with advanced non-small cell lung cancer that has a specific genetic change called METex14 skipping. Researchers will collect information on patient characteristics, treatments, and outcomes over time to better understand how this cancer is managed in the real world. The goal is to gather high-quality data to inform future care, not to test a new treatment.

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Conditions

The condition(s) this trial relates to.

cancer neoplasm non-small cell lung carcinoma

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

CANCER

Contacts and locations

Locations

AOU dell'Università degli Studi della Campania Luigi Vanvitelli
RECRUITING

Naples, Italy
AZ Delta
RECRUITING

Roeselare, Belgium
AZ Nikolaas
RECRUITING

Sint-Niklaas, Belgium
Azienda Ospedaliera Dei Colli - Ospedale Monaldi
RECRUITING

Naples, 80131, Italy
Azienda Ospedaliero Universitaria di Modena
RECRUITING

Modena, 41125, Italy
Azienda Sanitaria Ospedaliera S Luigi Gonzaga
RECRUITING

Torino, Italy
Bedford General Hospital
RECRUITING

Bedford, United Kingdom
Birmingham Heartlands Hospital
TERMINATED

Birmingham, United Kingdom
Bnei-Zion Medical Center
RECRUITING

Haifa, Israel
British Columbia Cancer Agency (6864)
RECRUITING

Vancouver, V5Z 4E6, Canada
CHRU Lille
RECRUITING

Lille, France
CHU de Pontchaillou
RECRUITING

Rennes, 35 033, France
CHU de Toulouse Hopital Larrey
RECRUITING

Toulouse, France
Carmel Medical Center
RECRUITING

Haifa, Israel
Centre Hospitalier de Cholet
RECRUITING

Cholet, France
Centre Leon Berard
RECRUITING

Lyon, France
Centro Hospitalar de Lisboa Norte, EPE - Hospital de Santa Maria
RECRUITING

Lisbon, Portugal
Centro Hospitalar do Porto E.P.E. Hospital de Santo António
RECRUITING

Porto, Portugal
Centro Integral Oncologico Clara Campa
RECRUITING

Madrid, Spain
Centro Oncologico MD Anderson
TERMINATED

Madrid, Spain
Chaim Sheba Medical Center
RECRUITING

Ramat Gan, Israel
Charing Cross Hospital
RECRUITING

London, United Kingdom
Clatterbridge Cancer Centre - Liverpool
RECRUITING

Liverpool, United Kingdom
Clinica Tres Torres
RECRUITING

Barcelona, Spain
Complejo Hospitalario Universitario Insular-Materno Infantil
TERMINATED

Las Palmas de Gran Canaria, Spain
FN Olomouc
RECRUITING

Olomouc, Czechia
Guy's Cancer Centre
NOT_YET_RECRUITING

London, SE1 9RT, United Kingdom
Haemek Medical Center
RECRUITING

Afula, Israel
Holy Cross Health
RECRUITING

Fort Lauderdale, Florida, 33308-4603, United States
Hospidal Universitario Ntra. Sra. De Valme
RECRUITING

Seville, Spain
Hospital Regional Universitario de Malaga - Hospital General
RECRUITING

Málaga, Spain
Hospital Tenon & University Paris 6
RECRUITING

Paris, France
Hospital Universitari i Politecnic La Fe de Valencia
RECRUITING

Valencia, Spain
Hospital Universitario Virgen Macarena
RECRUITING

Seville, Spain
Huddersfield Royal Infirmary
NOT_YET_RECRUITING

Huddersfield, West Yorkshire, HD3 3EA, United Kingdom
Hôpital du Scorff
RECRUITING

Lorient, France
I.F.O. Istituto Nazionale Tumori Regina Elena IRCCS
RECRUITING

Rome, Italy
Institut Curie - Centre de Lutte Contre le Cancer (CLCC)
RECRUITING

Paris, France
Institut Universitari Dexeus-Quiron - Servei d oncologia medica - Institut Oncologic Dr. Rosell
TERMINATED

Barcelona, Spain
Instituto Portugues de Oncologia Do Porto Francisco Gentil Epe - PPDS
RECRUITING

Porto Covo, Portugal
Istituto Europeo di Oncologia
RECRUITING

Milan, Italy
Istituto Nazionale Dei Tumori
RECRUITING

Milan, Italy
KKH Grosshansdorf GmbH
RECRUITING

Großhansdorf, Germany
Klinik Floridsdorf
RECRUITING

Vienna, Austria
Klinik Löwenstein GmbH
RECRUITING

Löwenstein, Germany
Klinikum Chemnitz GmbH
RECRUITING

Chemnitz, Germany
Klinikum Klagenfurt Am Woerthersee
RECRUITING

Klagenfurt, Austria
Leiden University Medical Center
RECRUITING

Leiden, Netherlands
Northwick Park Hospital
RECRUITING

Harrow, United Kingdom
Ospedale di Circolo
RECRUITING

Varese, Italy
Ottawa Hospital General Campus
RECRUITING

Ottawa, Canada
Preston Hospital
RECRUITING

Preston, United Kingdom
Princess Margaret Cancer Centre
RECRUITING

Toronto, Canada
Rabin Medical Center Oncology Beilinson Campus
RECRUITING

Petah Tikva, Israel
Rambam Medical Center - PPDS
RECRUITING

Haifa, Israel
Royal Bournemouth Hospital
RECRUITING

Bournemouth, United Kingdom
Shaare Zedek Medical Center
RECRUITING

Jerusalem, Israel
Tel Aviv Sourasky Medical Center
RECRUITING

Tel Aviv, Israel
The Ohio State University Wexner Medical Center
RECRUITING

Columbus, Ohio, 43221, United States
The Royal Marsden Hospital
RECRUITING

Chelsea, United Kingdom
Thoraxklinik-Heidelberg gGmbH
RECRUITING

Heidelberg, Germany
Universitair Medisch Centrum Groningen - Department of Medical Oncology
RECRUITING

Groningen, Netherlands
Universitetssjukhuset i Linköping
RECRUITING

Linköping, Sweden
University Hospital Na Bulovce
RECRUITING

Prague, Czechia
VU Medisch Centrum
RECRUITING

Amsterdam, Netherlands
Vanderbilt University Medical Center
ACTIVE_NOT_RECRUITING

Nashville, Tennessee, 37212, United States

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