Massive study follows blood disorder patients for life

NCT ID NCT02775383

Completed Knowledge-focused Sponsor: National Heart, Lung, and Blood Institute (NHLBI) Source: ClinicalTrials.gov ↗

Summary

This study aimed to understand how myelodysplastic syndromes (MDS) develop and progress over time. Researchers followed 2,115 patients with suspected or newly diagnosed MDS, collecting blood samples and health information for years. The goal was to create a research database to help scientists better understand this blood disorder and develop future treatments.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

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Locations

AMITA Health Alexian Brothers Medical Center

Elk Grove Village, Illinois, 60007, United States
AMITA Health Cancer Institute and Outpatient Center

Hinsdale, Illinois, 60521, United States
Abbott-Northwestern Hospital

Minneapolis, Minnesota, 55407, United States
Adams Cancer Center

Gettysburg, Pennsylvania, 17325, United States
Alliance for Childhood Diseases/Cure 4 the Kids Foundation

Las Vegas, Nevada, 89135, United States
Arnot Ogden Medical Center/Falck Cancer Center

Elmira, New York, 14905, United States
Ascension All Saints Hospital

Racine, Wisconsin, 53405, United States
Ascension Medical Group Southeast Wisconsin-Mayfair Road

Wauwatosa, Wisconsin, 53226, United States
Ascension Mercy Hospital

Oshkosh, Wisconsin, 54904, United States
Ascension Providence Hospitals - Southfield

Southfield, Michigan, 48075, United States
Ascension Saint Francis-Reiman Cancer Center

Franklin, Wisconsin, 53132, United States
Ascension Saint Mary's Hospital

Saginaw, Michigan, 48601, United States
Ascension Southeast Wisconsin Hospital-Elmbrook Campus

Brookfield, Wisconsin, 53045, United States
Ascension Via Christi Hospitals Wichita

Wichita, Kansas, 67218, United States
Associates In Womens Health

Wichita, Kansas, 67208, United States
Atlanta VA Medical Center

Decatur, Georgia, 30033, United States
Augusta Health Center for Cancer and Blood Disorders

Fishersville, Virginia, 22939, United States
Augusta University Medical Center

Augusta, Georgia, 30912, United States
Aurora Bay Area Medical Group-Marinette

Marinette, Wisconsin, 54143, United States
Aurora BayCare Medical Center

Green Bay, Wisconsin, 54311, United States
Aurora Cancer Care-Grafton

Grafton, Wisconsin, 53024, United States
Aurora Cancer Care-Kenosha South

Kenosha, Wisconsin, 53412, United States
Aurora Cancer Care-Milwaukee

Milwaukee, Wisconsin, 53226, United States
Aurora Cancer Care-Milwaukee West

Wauwatosa, Wisconsin, 53226, United States
Aurora Cancer Care-Racine

Racine, Wisconsin, 53406, United States
Aurora Cancer Care-Southern Lakes VLCC

Burlington, Wisconsin, 53105, United States
Aurora Health Care Germantown Health Center

Germantown, Wisconsin, 53022, United States
Aurora Health Center-Fond du Lac

Fontana, Wisconsin, 54937, United States
Aurora Medical Center in Summit

Summit, Wisconsin, 53066, United States
Aurora Saint Luke's Medical Center

Milwaukee, Wisconsin, 53215, United States
Aurora Sinai Medical Center

Milwaukee, Wisconsin, 53233, United States
Aurora West Allis Medical Center

West Allis, Wisconsin, 53227, United States
Avera Cancer Institute

Sioux Falls, South Dakota, 57105, United States
Avera Cancer Institute-Aberdeen

Aberdeen, South Dakota, 57401, United States
Baptist MD Anderson Cancer Center

Jacksonville, Florida, 32207, United States
Baptist Memorial Hospital and Cancer Center-Memphis

Memphis, Tennessee, 38120, United States
Beaumont Hospital - Dearborn

Dearborn, Michigan, 48124, United States
Benefis Healthcare-Sletten Cancer Institute

Great Falls, Montana, 59406, United States
Bozeman Deaconess Hospital

Bozeman, Montana, 59715, United States
CHI Health Saint Francis

Grand Island, Nebraska, 68803, United States
Cancer Care Specialists of Central Illinois - Decatur

Decatur, Illinois, 62568, United States
Cancer Care Specialists of O'Fallon

O'Fallon, Illinois, 62269, United States
Cancer Center of Kansas - Chanute

Chanute, Kansas, 66720, United States
Cancer Center of Kansas - Dodge City

Dodge City, Kansas, 67801, United States
Cancer Center of Kansas - Fort Scott

Fort Scott, Kansas, 66701, United States
Cancer Center of Kansas - Liberal

Liberal, Kansas, 67901, United States
Cancer Center of Kansas - Newton

Newton, Kansas, 67114, United States
Cancer Center of Kansas - Parsons

Parsons, Kansas, 67357, United States
Cancer Center of Kansas - Pratt

Pratt, Kansas, 67124, United States
Cancer Center of Kansas - Salina

Salina, Kansas, 67401, United States
Cancer Center of Kansas - Wellington

Wellington, Kansas, 67152, United States
Cancer Center of Kansas - Wichita

Wichita, Kansas, 67208, United States
Cancer Center of Kansas - Wichita Medical Arts Tower

Wichita, Kansas, 67208, United States
Cancer Center of Kansas - Winfield

Winfield, Kansas, 67156, United States
Cancer Center of Kansas-Independence

Independence, Kansas, 67301, United States
Cancer Center of Kansas-Kingman

Kingman, Kansas, 67068, United States
Cancer Centers of Southwest Oklahoma Research

Lawton, Oklahoma, 73505, United States
Capital Region Southwest Campus

Jefferson City, Missouri, 65109, United States
Carle Cancer Center

Urbana, Illinois, 61801, United States
Carle Physician Group-Effingham

Effingham, Illinois, 62401, United States
Carle Physician Group-Mattoon/Charleston

Mattoon, Illinois, 61938, United States
Carle on Vermilion

Danville, Illinois, 61832, United States
Centralia Oncology Clinic

Centralia, Illinois, 62801, United States
Christiana Care Health System-Christiana Hospital

Newark, Delaware, 19718, United States
Cleveland Clinic Akron General

Akron, Ohio, 44307, United States
Cleveland Clinic Cancer Center Independence

Independence, Ohio, 44131, United States
Cleveland Clinic Cancer Center Mansfield

Mansfield, Ohio, 44906, United States
Cleveland Clinic Cancer Center/Fairview Hospital

Fairview, Ohio, 44111, United States
Cleveland Clinic Foundation

Cleveland, Ohio, 44195, United States
Cleveland Clinic Wooster Family Health and Surgery Center

Wooster, Ohio, 44691, United States
Community Hospital of Anaconda

Anaconda, Montana, 59711, United States
CoxHealth South Hospital

Springfield, Missouri, 65807, United States
Crossroads Cancer Center

Effingham, Illinois, 62401, United States
Decatur Memorial Hospital

Decatur, Illinois, 62522, United States
Delbert Day Cancer Institute at PCRMC

Rolla, Missouri, 65401, United States
Dell Seton Medical Center at The University of Texas

Austin, Texas, 78701, United States
Durham VA Medical Center

Durham, North Carolina, 27705, United States
Easton Hospital

Easton, Pennsylvania, 18042, United States
Eisenhower Medical Center

Rancho Mirage, California, 92270, United States
Ephrata Cancer Center

Ephrata, Pennsylvania, 17522, United States
Essentia Health Cancer Center

Duluth, Minnesota, 55805, United States
Essentia Health Saint Mary's Medical Center

Duluth, Minnesota, 55805, United States
Fairview Southdale Hospital

Edina, Minnesota, 55435, United States
Fred Hutchinson Cancer Research Center

Seattle, Washington, 98109, United States
Geisinger Cancer Services - Pottsville

Pottsville, Pennsylvania, 17901, United States
Geisinger Medical Center

Danville, Pennsylvania, 17821, United States
Geisinger Medical Center - Cancer Center Hazleton

Hazleton, Pennsylvania, 18201, United States
Geisinger Medical Oncology - Lewisburg

Lewisburg, Pennsylvania, 17837, United States
Geisinger Wyoming Valley/Henry Cancer Center

Wilkes-Barre, Pennsylvania, 18711, United States
Glens Falls Hospital

Glens Falls, New York, 12801, United States
Greater Regional Medical Center

Creston, Iowa, 50801, United States
Gundersen Lutheran Medical Center

La Crosse, Wisconsin, 54601, United States
Harold Alfond Center for Cancer Care

Augusta, Maine, 04330, United States
Harrison HealthPartners Hematology and Oncology-Bremerton

Bremerton, Washington, 98310, United States
Harrison HealthPartners Hematology and Oncology-Poulsbo

Poulsbo, Washington, 98370, United States
Harrison Medical Center

Bremerton, Washington, 98310, United States
Hawaii Cancer Care Inc-POB II

Honolulu, Hawaii, 96817, United States
Heartland Regional Medical Center

Saint Joseph, Missouri, 64506, United States
Helen F Graham Cancer Center

Newark, Delaware, 19713, United States
Hillcrest Hospital Cancer Center

Mayfield Heights, Ohio, 44124, United States
Holy Family Memorial Hospital

Manitowoc, Wisconsin, 54220, United States
Hope Cancer Care of Nevada

Las Vegas, Nevada, 89103, United States
IHA Hematology Oncology Consultants-Ann Arbor

Ypsilanti, Michigan, 48197, United States
IHA Hematology Oncology Consultants-Brighton

Brighton, Michigan, 48114, United States
IHA Hematology Oncology Consultants-Canton

Canton, Michigan, 48188, United States
IHA Hematology Oncology Consultants-Chelsea

Chelsea, Michigan, 48118, United States
Illinois CancerCare - Bloomington

Bloomington, Illinois, 61704, United States
Illinois CancerCare - Galesburg

Galesburg, Illinois, 61401, United States
Illinois CancerCare - Peoria

Peoria, Illinois, 61615, United States
Indian River Medical Center

Vero Beach, Florida, 32960, United States
Inspira Medical Center Woodbury

Woodbury, New Jersey, 08096, United States
Iowa Methodist Medical Center

Des Moines, Iowa, 50309, United States
James J Peters VA Medical Center

The Bronx, New York, 10468, United States
Johns Hopkins University/Sidney Kimmel Cancer Center

Baltimore, Maryland, 21231, United States
Kaiser Permanente - Panorama City

Panorama City, California, 91402, United States
Kaiser Permanente - South Bay

Harbor City, California, 90710, United States
Kaiser Permanente Los Angeles Medical Center

Los Angeles, California, 90027, United States
Kaiser Permanente Northwest

Portland, Oregon, 97227, United States
Kaiser Permanente-Anaheim

Anaheim, California, 92806, United States
Kaiser Permanente-Baldwin Park

Baldwin Park, California, 91706, United States
Kaiser Permanente-Bellflower

Bellflower, California, 90706, United States
Kaiser Permanente-Cadillac

Los Angeles, California, 90034, United States
Kaiser Permanente-Fontana

Fontana, California, 92335, United States
Kaiser Permanente-Irvine

Irvine, California, 92618, United States
Kaiser Permanente-Riverside

Riverside, California, 92505, United States
Kaiser Permanente-San Diego Zion

San Diego, California, 92120, United States
Kaiser Permanente-San Marcos

San Marcos, California, 92078, United States
Kaiser Permanente-Woodland Hills

Woodland Hills, California, 91367, United States
Kansas City Veterans Affairs Medical Center

Kansas City, Missouri, 64128, United States
Kansas Institute of Medicine Cancer and Blood Center

Lenexa, Kansas, 66219, United States
Kapiolani Medical Center for Women and Children

Honolulu, Hawaii, 96826, United States
Kootenai Cancer Center

Post Falls, Idaho, 83854, United States
Kootenai Cancer Clinic

Sandpoint, Idaho, 83864, United States
Kootenai Medical Center

Coeur d'Alene, Idaho, 83814, United States
Lakeland Regional Health Hollis Cancer Center

Lakeland, Florida, 33805, United States
Lawrence Memorial Hospital

Lawrence, Kansas, 66044, United States
Lehigh Valley Hospital-Cedar Crest

Allentown, Pennsylvania, 18103, United States
Lehigh Valley Hospital-Muhlenberg

Bethlehem, Pennsylvania, 18017, United States
Lewis Cancer and Research Pavilion at Saint Joseph's/Candler

Savannah, Georgia, 31405, United States
Long Island Jewish Medical Center

New Hyde Park, New York, 11040, United States
Maimonides Medical Center

Brooklyn, New York, 11219, United States
Maine Medical Partners-South Portland

South Portland, Maine, 01406, United States
MaineHealth/SMHC Cancer Care and Blood Disorders-Biddeford

Biddeford, Maine, 04005, United States
MaineHealth/SMHC Cancer Care and Blood Disorders-Sanford

Sanford, Maine, 04073, United States
Marshfield Clinic Stevens Point Center

Stevens Point, Wisconsin, 54482, United States
Marshfield Clinic-Minocqua Center

Minocqua, Wisconsin, 54548, United States
Marshfield Clinic-Weston Center

Weston, Wisconsin, 54476, United States
Marshfield Medical Center - EC Cancer Center

Eau Claire, Wisconsin, 54701, United States
Marshfield Medical Center - Marshfield

Marshfield, Wisconsin, 54449, United States
Marshfield Medical Center - Rice Lake

Rice Lake, Wisconsin, 54868, United States
Mayo Clinic Health System-Franciscan Healthcare

La Crosse, Wisconsin, 54601, United States
Mayo Clinic in Florida

Jacksonville, Florida, 32224, United States
Medical Oncology Hematology Consultants PA

Newark, Delaware, 19713, United States
Medical Oncology and Hematology Associates-Des Moines

Des Moines, Iowa, 50314, United States
Medical Oncology and Hematology Associates-Laurel

Des Moines, Iowa, 50314, United States
Medical Oncology and Hematology Associates-West Des Moines

Clive, Iowa, 50325, United States
Meharry Medical College

Nashville, Tennessee, 37208, United States
Memorial Hospital of Carbondale

Carbondale, Illinois, 62901, United States
Memorial Medical Center-Las Cruces

Las Cruces, New Mexico, 88011, United States
Mercy Cancer Center-West Lakes

Clive, Iowa, 50325, United States
Mercy Clinic - Rolla - Cancer and Hematology

Rolla, Missouri, 65401, United States
Mercy Hospital

Cedar Rapids, Iowa, 52403, United States
Mercy Hospital

Coon Rapids, Minnesota, 55433, United States
Mercy Hospital Oklahoma City

Oklahoma City, Oklahoma, 73120, United States
Mercy Hospital Springfield

Springfield, Missouri, 65804, United States
Mercy Medical Center - Des Moines

Des Moines, Iowa, 50314, United States
Mercy Medical Center-West Lakes

West Des Moines, Iowa, 50266, United States
Metro Health Hospital

Wyoming, Michigan, 49519, United States
MetroHealth Medical Center

Cleveland, Ohio, 44109, United States
Michigan State University Clinical Center

East Lansing, Michigan, 48824, United States
Miller-Dwan Hospital

Duluth, Minnesota, 55805, United States
Minneapolis VA Medical Center

Minneapolis, Minnesota, 55417, United States
Mission Hospital

Asheville, North Carolina, 28801, United States
Moffitt Cancer Center

Tampa, Florida, 33612, United States
Montefiore Medical Center - Einstein Campus

The Bronx, New York, 10461, United States
Montefiore Medical Center - Moses Campus

The Bronx, New York, 10467, United States
Monument Health Rapid City Hospital

Rapid City, South Dakota, 57701, United States
MultiCare Auburn Medical Center

Auburn, Washington, 98001, United States
MultiCare Gig Harbor Medical Park

Gig Harbor, Washington, 98335, United States
MultiCare Good Samaritan Hospital

Puyallup, Washington, 98372, United States
MultiCare Tacoma General Hospital

Tacoma, Washington, 98405, United States
North Coast Cancer Care

Sandusky, Ohio, 44870, United States
North Shore University Hospital

Lake Success, New York, 11042, United States
Northeast Georgia Medical Center-Gainesville

Gainesville, Georgia, 30501, United States
Northside Hospital

Atlanta, Georgia, 30342, United States
Northside Hospital - Duluth

Duluth, Georgia, 30096, United States
Northside Hospital - Gwinnett

Lawrenceville, Georgia, 30046, United States
Northwell Health/Center for Advanced Medicine

Lake Success, New York, 11042, United States
OnCare Hawaii - Liliha

Honolulu, Hawaii, 96817, United States
Oncology Associates at Mercy Medical Center

Cedar Rapids, Iowa, 52403, United States
OptumCare Cancer Care at Fort Apache

Las Vegas, Nevada, 89148, United States
OptumCare Cancer Care at Mountainview

Las Vegas, Nevada, 89128, United States
OptumCare Cancer Care at Oakey

Las Vegas, Nevada, 89102, United States
OptumCare Cancer Care at Seven Hills

Henderson, Nevada, 89052, United States
Oregon Health & Science University

Portland, Oregon, 97239, United States
Pali Momi Medical Center

‘Aiea, Hawaii, 96701, United States
Park Nicollet Clinic - Saint Louis Park

Saint Louis Park, Minnesota, 55416, United States
Penn State Health Saint Joseph Medical Center

Reading, Pennsylvania, 19605, United States
Penobscot Bay Medical Center

Rockport, Maine, 04856, United States
Phelps Memorial Hospital Center

Sleepy Hollow, New York, 10591, United States
Phoenixville Hospital

Phoenixville, Pennsylvania, 19460, United States
Pottstown Hospital

Pottstown, Pennsylvania, 19464, United States
Presence Saint Mary's Hospital

Kankakee, Illinois, 60901, United States
Prisma Health Cancer Institute - Easley

Easley, South Carolina, 29640, United States
Prisma Health System Cancer Institute - Butternut

Reidville, South Carolina, 29605, United States
Prisma Health System Cancer Institute - Eastside

Greenville, South Carolina, 29605, United States
Prisma Health System Cancer Institute - Faris

Greenville, South Carolina, 29605, United States
Prisma Health System Cancer Institute - Greer

Greer, South Carolina, 29650, United States
Prisma Health System Cancer Institute - Seneca

Seneca, South Carolina, 29672, United States
Prisma Health System Cancer Institute - Spartanburg

Spartanburg, South Carolina, 29307, United States
Queen's Cancer Center - Kuakini

Honolulu, Hawaii, 96817, United States
Queen's Cancer Center - POB I

Honolulu, Hawaii, 96813, United States
Queen's Cancer Center - Pearlridge

‘Aiea, Hawaii, 96701, United States
Queen's Medical Center

Honolulu, Hawaii, 96813, United States
Ralph H Johnson VA Medical Center

Charleston, South Carolina, 29401, United States
Regional Hematology and Oncology PA

Newark, Delaware, 19713, United States
Rocky Mountain Regional VA Medical Center

Aurora, Colorado, 80045, United States
Roswell Park Cancer Institute

Buffalo, New York, 14263, United States
SIH Cancer Institute

Carterville, Illinois, 62918, United States
Saint Francis Cancer Center

Greenville, South Carolina, 29607, United States
Saint Francis Hospital

Greenville, South Carolina, 29601, United States
Saint Francis Medical Center

Cape Girardeau, Missouri, 63703, United States
Saint Francis Regional Medical Center

Shakopee, Minnesota, 55739, United States
Saint Joseph Mercy Brighton

Brighton, Michigan, 48114, United States
Saint Joseph Mercy Canton

Canton, Michigan, 48188, United States
Saint Joseph Mercy Chelsea

Chelsea, Michigan, 48118, United States
Saint Joseph Mercy Hospital

Ann Arbor, Michigan, 48106, United States
Saint Luke's Hospital of Duluth

Duluth, Minnesota, 55802, United States
Saint Vincent Hospital Cancer Center Green Bay

Green Bay, Wisconsin, 54301, United States
Saint Vincent Hospital Cancer Center at Saint Mary's

Green Bay, Wisconsin, 53715, United States
Sanford Bismarck Medical Center

Bismarck, North Dakota, 58501, United States
Sanford Broadway Medical Center

Fargo, North Dakota, 58122, United States
Sanford Cancer Center Oncology Clinic

Sioux Falls, South Dakota, 57104, United States
Sanford Clinic North-Fargo

Fargo, North Dakota, 58102, United States
Sanford Joe Lueken Cancer Center

Bemidji, Minnesota, 56601, United States
Sanford Roger Maris Cancer Center

Fargo, North Dakota, 58122, United States
Sanford USD Medical Center - Sioux Falls

Sioux Falls, South Dakota, 57117, United States
Seattle Cancer Care Alliance

Seattle, Washington, 98109, United States
Sechler Family Cancer Center

Lebanon, Pennsylvania, 17042, United States
Self Regional Healthcare

Greenwood, South Carolina, 29646, United States
Shaare Zedek Medical Center

Jerusalem, 9103102, Israel
Smilow Cancer Center/Yale-New Haven Hospital

New Haven, Connecticut, 06511, United States
Spartanburg Medical Center

Spartanburg, South Carolina, 29303, United States
Spectrum Health Reed City Hospital

Reed City, Michigan, 49677, United States
Spectrum Health at Butterworth Campus

Grand Rapids, Michigan, 49503, United States
Stephens Memorial Hospital

Norway, Maine, 04268, United States
Straub Clinic and Hospital

Honolulu, Hawaii, 96813, United States
Suburban Hematology Oncology Associates - Snellville

Snellville, Georgia, 30078, United States
Tibor Rubin VA Medical Center

Long Beach, California, 90822, United States
UM Upper Chesapeake Medical Center

Bel Air, Maryland, 21014, United States
UMass Memorial Medical Center - University Campus

Worcester, Massachusetts, 01655, United States
UPMC Susquehanna

Williamsport, Pennsylvania, 17701, United States
UT Southwestern Clinical Center at Richardson/Plano

Richardson, Texas, 75080, United States
UT Southwestern/Simmons Cancer Center-Dallas

Dallas, Texas, 75390, United States
United Hospital

Saint Paul, Minnesota, 55102, United States
Unity Hospital

Fridley, Minnesota, 55432, United States
University of Hawaii Cancer Center

Honolulu, Hawaii, 96813, United States
University of New Mexico Cancer Center

Albuquerque, New Mexico, 87106, United States
University of Oklahoma Health Sciences Center

Oklahoma City, Oklahoma, 73104, United States
University of Pennsylvania/Abramson Cancer Center

Philadelphia, Pennsylvania, 19104, United States
University of Texas Health Science Center at San Antonio

San Antonio, Texas, 78229, United States
University of Washington Medical Center

Seattle, Washington, 98115, United States
University of Wisconsin Hospital and Clinics

Madison, Wisconsin, 53792, United States
Va Palo Alto Health Care System

Palo Alto, California, 94304, United States
Veterans Administration New Jersey Health Care System

East Orange, New Jersey, 07018-1095, United States
Veterans Affairs Connecticut Healthcare System-West Haven Campus

West Haven, Connecticut, 06516, United States
Veterans Affairs Medical Center - San Francisco

San Francisco, California, 94121, United States
Vince Lombardi Cancer Clinic - Oshkosh

Oshkosh, Wisconsin, 54904, United States
Vince Lombardi Cancer Clinic-Marinette

Marinette, Wisconsin, 54143, United States
Vince Lombardi Cancer Clinic-Sheboygan

Sheboygan, Wisconsin, 53081, United States
Vince Lombardi Cancer Clinic-Two Rivers

Two Rivers, Wisconsin, 54241, United States
Waldo County General Hospital

Belfast, Maine, 04915, United States
Walter Reed National Military Medical Center

Bethesda, Maryland, 20889, United States
WellSpan Health-York Hospital

York, Pennsylvania, 17401, United States
West Michigan Cancer Center

Kalamazoo, Michigan, 22787, United States
West Virginia University Charleston Division

Charleston, West Virginia, 25304, United States
William Beaumont Hospital - Troy

Troy, Michigan, 48073, United States
William Beaumont Hospital-Royal Oak

Royal Oak, Michigan, 48073, United States
William S Middleton VA Medical Center

Madison, Wisconsin, 53705, United States
Yale University

New Haven, Connecticut, 06520, United States
York Hospital

York Village, Maine, 03909, United States

Conditions

Explore the condition pages connected to this study.

MYELODYSPLASTIC SYNDROMES (MDS)