Scientists track rare bone disease to unlock its secrets
NCT ID NCT00001727
Summary
This study aims to understand the long-term progression of McCune-Albright Syndrome, a rare disorder that causes abnormal bone growth, skin spots, and hormonal issues. Researchers will follow up to 500 patients over time, collecting health data and tissue samples to learn how the disease develops and changes. The goal is to gather knowledge that could lead to better future treatments, but this study itself does not test any new therapies.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.