NIH launches Long-Term study to unravel rare bone disease
NCT ID NCT00001727
First seen Nov 01, 2025 · Last updated May 13, 2026 · Updated 25 times
Summary
This study tracks up to 500 people with polyostotic fibrous dysplasia or McCune-Albright syndrome to learn how the disease changes over time. Researchers will collect medical data and tissue samples to better understand bone lesions and related hormone problems. The goal is to improve future treatments, not to test a new therapy.
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the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.