Scientists launch major study to unravel rare bone disease
NCT ID NCT00001727
First seen Jun 27, 2026 · Last updated Aug 05, 2026 · Updated 8 times
Summary
This study follows up to 500 people with polyostotic fibrous dysplasia or McCune-Albright syndrome to learn how these conditions change over time. Researchers will collect medical data and tissue samples to better understand the disease. The goal is to improve future diagnosis and treatment, not to test a new therapy.
What this could mean
Our plain-language read of the trial. This is informational only — not medical advice or a prediction.
- What this could lead to
- If successful, this study could lead to a deeper understanding of how these bone diseases progress, which may help develop future treatments.
- What could go wrong
- This is an observational study, not a treatment trial. It will not directly improve participants' health, and results may take many years to yield practical benefits.
This is an AI summary of the original study and may miss details. Read our disclaimer.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
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