Marfan syndrome in kids: new study looks at emotional toll
NCT ID NCT05748314
First seen Nov 01, 2025 · Last updated May 16, 2026 · Updated 25 times
Summary
This study looks at how Marfan syndrome affects the daily lives of 80 children. Researchers want to understand how the condition impacts quality of life, self-image, and the ability to manage their own health. Participants fill out four questionnaires to help doctors identify who might need extra psychological support.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Locations
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IRCCS Policlinico San Donato
San Donato Milanese, Lombardy, 20097, Italy
Conditions
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