Researchers ask: how do kids with rare genetic condition see themselves?
NCT ID NCT05748314
Summary
This study aims to understand how Marfan syndrome affects children's quality of life, self-image, and ability to manage their condition. Researchers will have 80 Italian children with Marfan syndrome complete questionnaires about their experiences. The goal is to identify which children might benefit from psychological support to help them cope better with their condition.
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Contacts and locations
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Locations
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IRCCS Policlinico San Donato
San Donato Milanese, Lombardy, 20097, Italy
Conditions
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