Website aims to boost lung transplant awareness in cystic fibrosis
NCT ID NCT06030206
First seen Jan 10, 2026 · Last updated May 16, 2026 · Updated 19 times
Summary
This study tests if a special website helps people with cystic fibrosis (CF) feel more prepared to discuss lung transplant with their doctors. Many people with CF die without ever considering this option, especially those from marginalized communities. Over 6 months, 132 participants will use the website, complete surveys, and have clinic visits recorded to see if it improves their readiness for these important conversations.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Baylor College of Medicine
Houston, Texas, 77030, United States
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Johns Hopkins University
Baltimore, Maryland, 21205, United States
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Maine Health
Portland, Maine, 04102, United States
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National Jewish Health
Denver, Colorado, 80206, United States
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University of California at Los Angeles (UCLA)
Los Angeles, California, 980095, United States
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University of Cincinnati
Cincinnati, Ohio, 45267, United States
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University of Kansas
Kansas City, Kansas, 66160, United States
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University of Minnesota
Minneapolis, Minnesota, 55455, United States
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University of Pittsburgh
Pittsburgh, Pennsylvania, 15213, United States
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University of Washington Medical Center - Montlake
Seattle, Washington, 98195, United States
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Yale University
New Haven, Connecticut, 06520, United States
Conditions
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