Life after a rare brain disease: what happens to young patients Long-Term?
NCT ID NCT07158229
First seen Oct 31, 2025 · Last updated May 14, 2026 · Updated 27 times
Summary
This study looks at the long-term social and emotional well-being of people who had NMDA receptor encephalitis, a rare brain disease. Researchers will use questionnaires to measure fatigue, anxiety, depression, sleep, and quality of life in 30 adults who are at least 18 years old. The goal is to understand how the disease affects daily life after recovery, especially since most patients are young and may face lasting challenges.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Centre de référence des syndromes neurologies paranéoplasiques et encéphalites auto-immunes - Hôpital neurologiques Pierre WERTHEIMER - Groupement hospitalier Est - Hospices civiles de Lyon
RECRUITINGBron, 69500, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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