Life after a rare brain disease: new study reveals hidden struggles
NCT ID NCT06609044
First seen Dec 16, 2025 · Last updated May 15, 2026 · Updated 18 times
Summary
This study looked at 20 adults who had NMDA receptor encephalitis, a rare brain disease that can cause severe symptoms like seizures and memory loss. Researchers wanted to understand how the disease affects people's social lives, emotions, and daily functioning years after the acute phase. Participants filled out questionnaires about their thinking, mood, and quality of life. No new treatments were tested—the goal was simply to learn more about the long-term challenges these patients face.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Centre de référence des syndromes neurologies paranéoplasiques et encéphalites auto-immunes - Hôpital neurologiques Pierre WERTHEIMER
Bron, 69500, France
Conditions
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