Life after a rare brain disease: new study reveals hidden struggles

NCT ID NCT06609044

First seen Dec 16, 2025 · Last updated May 15, 2026 · Updated 18 times

Summary

This study looked at 20 adults who had NMDA receptor encephalitis, a rare brain disease that can cause severe symptoms like seizures and memory loss. Researchers wanted to understand how the disease affects people's social lives, emotions, and daily functioning years after the acute phase. Participants filled out questionnaires about their thinking, mood, and quality of life. No new treatments were tested—the goal was simply to learn more about the long-term challenges these patients face.

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Contacts and locations

Locations

  • Centre de référence des syndromes neurologies paranéoplasiques et encéphalites auto-immunes - Hôpital neurologiques Pierre WERTHEIMER

    Bron, 69500, France

Conditions

Explore the condition pages connected to this study.