New drug tested for long-term safety in kids with rare muscle weakness disease
NCT ID NCT05374590
First seen Nov 19, 2025 · Last updated Apr 25, 2026 · Updated 21 times
Summary
This study looks at the long-term safety of a drug called efgartigimod in children with generalized myasthenia gravis, a disease that causes muscle weakness. About 12 children who already took part in earlier studies will continue receiving the drug either through a vein or as a shot under the skin. The goal is to track side effects and see how the body reacts to the medicine over time.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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AP-HM- Hôpital de La Timone
Marseille, 13005, France
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Ann and Robert H Lurie Children's Hospital of Chicago - Main Hospital
Chicago, Illinois, 60611, United States
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Atrium Health Neurology Specialty Care
Charlotte, North Carolina, 28207, United States
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Centralny Szpital Kliniczny - Uniwersyteckie Centrum Kliniczne WUM
Warsaw, 02-097, Poland
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Childrens Hospital of Eastern Ontario
Ottawa, K1H 8L1, Canada
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Great Ormand Street Hospital for Children NHS Foundation Trust - Great Ormond Street Hospital - Pediatric Neurology
London, WC1N 3JH, United Kingdom
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Hadassah Medical Center- Ein Kerem
Jerusalem, 9112001, Israel
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Hospital Universitari i Politecnic La Fe de Valencia
Valencia, 46026, Spain
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Leids Universitair Medisch Centrum
Leiden, 2333 ZA, Netherlands
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Oxford University Hospitals NHS Foundation Trust - John Radcliffe Hospital Children's Hospital
Oxford, OX3 9DU, United Kingdom
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UZ Gent
Ghent, 9000, Belgium
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Universitair Ziekenhuis Antwerpen
Edegem, 2650, Belgium
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University of Virginia (UVA) Health - Developmental Pediatrics Clinic
Charlottesville, Virginia, 22903, United States
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Universitätsklinikum Essen
Essen, 45147, Germany
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Uniwersyteckie Centrum Kliniczne w Gdansku
Gdansk, 80-211, Poland
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Wielospecjalistyczna Poradnia Lekarska Synapsis
Katowice, 40-123, Poland
Conditions
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