Five more years: tracking a genetic bone disease before it strikes
NCT ID NCT03859895
Summary
This study is a 5-year extension to monitor people with a high genetic risk for Paget's disease of the bone. It follows up on 287 participants from a previous trial that tested whether an early drug treatment could prevent bone damage. The main goal is to see if preventing early bone lesions actually leads to fewer symptoms like pain or deformity over the long term.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Guy's and St Thomas Hospital NHS Trust
London, England, SE1 9RT, United Kingdom
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King's College Hospital
London, England, SE5 9RS, United Kingdom
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Manchester Royal Infirmary
Manchester, England, M13 9WL, United Kingdom
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NHS Lothian
Edinburgh, Scotland, EH4 2XU, United Kingdom
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Royal Newcastle Centre
Newcastle, NSW 2305, Australia
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Sir Charles Gardner Hospital
Nedlands, 6009, Australia
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St. Vincent's University Hospital
Dublin, Ireland
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The Princess Margaret Hospital
Christchurch, 731 8022, New Zealand
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Univeristy of Barcelona
Barcelona, Spain
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University Hospital Geelong
Geelong, 3220, Australia
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University Hospital Saint-Luc
Brussels, Belgium
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University Hospital of Careggi
Florence, 50139, Italy
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University Hospital of Salamanca
Salamanca, 37007, Spain
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University of Auckland
Auckland, 92019, New Zealand
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University of Bristol
Bristol, England, BC10 5NB, United Kingdom
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University of Liverpool
Liverpool, England, L7 8XP, United Kingdom
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University of Queensland
Toowoomba, QLD 4350, Australia
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University of Siena
Siena, 53100, Italy
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University of Sydney
Sydney, Australia
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University of Turin
Turin, 10126, Italy
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Wrexham Maelor Hospital
Wrexham, Wales, LL13 7TD, United Kingdom
Conditions
Explore the condition pages connected to this study.