Hope for kids with rare liver disease: 2-Year drug trial aims to prevent transplants
NCT ID NCT05426733
Summary
This study is a 2-year follow-up to see if a drug called odevixibat can help children with biliary atresia live longer without needing a liver transplant. It will track about 180 children who were in a previous study to measure the drug's long-term safety and its effect on liver health and growth. The main goal is to see if the treatment can control the disease and delay or prevent the need for major surgery.
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Contacts and locations
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Locations
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ASST Papa Giovanni XXIII
Bergamo, Italy
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Akdeniz University Medical Faculty
Antalya, Turkey (Türkiye)
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Azienda Ospedaliera di Padova
Padua, Italy
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Bicêtre Hospital
Le Kremlin-Bicêtre, France
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Boston Children's Hospital
Boston, Massachusetts, 02115, United States
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CHU Sainte-Justine
Montreal, Canada
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Charité - Universitätsmedizin Berlin
Berlin, Germany
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Children's Healhcare of Atlanta- Emory University school of medicine
Atlanta, Georgia, 30322, United States
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Children's Hospital Colorado
Aurora, Colorado, 80045, United States
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Children's Hospital of Fudan University
Shanghai, China
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Children's Mercy Hospital and Clinics
Kansas City, Missouri, 64108, United States
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Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio, 45229, United States
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Columbia University Medical Center New York Presbyterian Morgan Stanley-Komansky Childrens Hospital
New York, New York, 10032, United States
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Guangzhou Women And Childrens Medical Center
Guangdong, China
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Hacettepe İhsan Doğramacı Children's Hospital
Ankara, Turkey (Türkiye)
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Hassenfeld Children's Hospital at NYU Langone
New York, New York, 10016, United States
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Hospital Raja Perempuan Zainab II
Kota Bharu, Malaysia
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Hospital Universitari Vall d'Hebron
Barcelona, Spain
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Indiana University school of Medicine
Indianapolis, Indiana, 46202, United States
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Instytut Pomnik-Centrum Zdrowia Dziecka
Warsaw, Poland
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Istanbul University Istanbul Medical Faculty Hospital
Istanbul, Turkey (Türkiye)
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Royal Children's Hospital
Parkville, 3052, Australia
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Seattle Children's Hospital
Seattle, Washington, 98105, United States
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Seoul National University Childrens Hospital
Seoul, South Korea
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Starship Child Health, Te Whatu Ora - Health New Zealand
Auckland, 1023, New Zealand
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The Childrens Hospital at Montefiore Albert Einstein School of Medicine
The Bronx, New York, 10467, United States
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The Hospital for Sick Children
Toronto, Canada
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University Children´s Hospital Tuebingen
Tübingen, Germany
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University Malaya Medical Centre
Kuala Lumpur, 59100, Malaysia
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University Medical Center Groningen
Groningen, Netherlands
Conditions
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