Young survivors of rare brain disease face hidden Long-Term struggles
NCT ID NCT07158229
Summary
This study aims to understand the long-term social and psychological challenges faced by young adults who have recovered from the acute phase of a rare autoimmune brain disease called NMDA receptor encephalitis. Researchers will survey 30 adult patients to measure their quality of life, fatigue, anxiety, depression, and sleep quality after their initial illness. The goal is to gather essential information to improve future support for survivors, as the lasting impact on their daily lives, education, and careers is not well understood.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
Get updates
Get notified about this study
Sign up to get updates when this study changes or when new studies for NMDAR AUTOIMMUNE ENCEPHALITIS are added.
By submitting, you agree to our Terms of use
Contacts and locations
Show contact details
Enter your email to view the contact information for this study.
By submitting, you agree to our Terms of use
Study contacts
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
-
Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
-
Centre de référence des syndromes neurologies paranéoplasiques et encéphalites auto-immunes - Hôpital neurologiques Pierre WERTHEIMER - Groupement hospitalier Est - Hospices civiles de Lyon
RECRUITINGBron, 69500, France
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
Explore the condition pages connected to this study.