Tracking Long-Term results of promising bleeding disorder treatment
NCT ID NCT07018401
Summary
This study follows patients with hereditary hemorrhagic telangiectasia (HHT) who previously participated in a trial testing pomalidomide for bleeding control. Researchers are tracking these patients over time to understand the long-term safety and effectiveness of the treatment. The study focuses on nosebleeds, gastrointestinal bleeding, and anemia in 62 participants across multiple U.S. medical centers.
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Contacts and locations
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Locations
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Cleveland Clinic
Cleveland, Ohio, 44195, United States
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Johns Hopkins University
Baltimore, Maryland, 21218, United States
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Massachusetts General Hospital
Boston, Massachusetts, 02114, United States
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Mayo Clinic
Rochester, Minnesota, 55905, United States
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Medical College of Wisconsin
Milwaukee, Wisconsin, 53226, United States
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University of California-San Diego
San Diego, California, 92093, United States
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University of California-San Francisco
San Francisco, California, 94143, United States
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University of Florida
Gainesville, Florida, 32610, United States
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University of North Carolina, Chapel HIll
Chapel Hill, North Carolina, 27599, United States
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University of Pennsylvania
Philadelphia, Pennsylvania, 19104, United States
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University of Utah
Salt Lake City, Utah, 84112, United States
Conditions
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