Global PCD community speaks: online study captures Real-Life health journey
NCT ID NCT04602481
Summary
This study aims to learn more about primary ciliary dyskinesia (PCD) by gathering information directly from people who live with it. Anyone, anywhere in the world, with suspected or confirmed PCD can join by completing online questionnaires about their symptoms, treatments, and daily life. The goal is to use this shared knowledge to improve health and quality of life for the PCD community.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Institute of Social and Preventive Medicine (ISPM), University of Bern
RECRUITINGBern, 3012, Switzerland
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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