Cure My Disease

Don't miss your cure!

 Log in / Sign up

Massive european registry launches to unlock secrets of rare fat disorder

NCT ID NCT03553420

Recruiting now Knowledge-focused Sponsor: University of Ulm Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study is a European registry for people with lipodystrophy, a rare condition where the body loses or lacks fat tissue. Researchers will follow up to 5,000 patients over time, collecting health data and genetic information. The goal is to better understand the disease, its progression, and how it affects patients, which could lead to improved care and future research.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to
If successful, this registry could provide crucial data to better understand lipodystrophy and improve care for patients.
What could go wrong
This is an observational registry, not a treatment trial. It will not directly test any new therapy, so benefits for patients are indirect and long-term.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for LIPODYSTROPHY ACQUIRED are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Conditions

The condition(s) this trial relates to.

acquired lipodystrophy congenital generalized lipodystrophy familial partial lipodystrophy lipodystrophy

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

LIPODYSTROPHY ACQUIRED LIPODYSTROPHY CONGENITAL

Contacts and locations

Locations

  • AP-HP Nord Université de Paris, Hôpital Universitaire Robert-Debré

    RECRUITING

    Paris, France

  • Abel Salazar Biomedical Sciences Institute - University of Porto

    RECRUITING

    Porto, Portugal

  • Academic Medical Center, University of Amsterdam

    RECRUITING

    Amsterdam, Netherlands

  • C. I. Parhon National Institute of Endocrinology, Bucharest, Romania

    RECRUITING

    Bucharest, Romania

  • Department of Internal Medicine (Endocrinology and Nephrology), University of Leipzig

    RECRUITING

    Leipzig, Germany

  • Dept for Pediatrics and Adolescent Medicine, University of Ulm: Interdisciplinary obesity clinic

    RECRUITING

    Ulm, 89075, Germany

  • Dokuz Eylul University School of Medicine

    RECRUITING

    Izmir, Turkey (Türkiye)

  • Endocrine Unit of University Hospital of Pisa

    RECRUITING

    Pisa, Italy

  • Endocrinology Research Centre

    RECRUITING

    Moscow, Russia

  • Endocrinology Unit, Department of Clinical and Medical science, S. Orsola-Malpighi Hospital , University of Bologna

    RECRUITING

    Bologna, Italy

  • Kinder-und Jugendkrankenhaus AUF DER BULT

    RECRUITING

    Hanover, Germany

  • Lille University

    RECRUITING

    Lille, France

  • Marmara University, Pediatric Endocrinology and Diabetes

    RECRUITING

    Istanbul, Turkey (Türkiye)

  • Med. Klinik B für Gastroenterologie und Hepatologie, Universitätsklinikum Münster

    RECRUITING

    Münster, 48149, Germany

  • Medical University of Vienna

    RECRUITING

    Vienna, Austria

  • National Taiwan University Hospital

    RECRUITING

    Taipei, Taiwan

  • National and Kapodistrian University of Athens

    RECRUITING

    Athens, Greece

  • Palermo University

    RECRUITING

    Palermo, Italy

  • Pierre et Marie Curie School of Medicine, Sorbonne University

    RECRUITING

    Paris, France

  • Policlinic University Hospital of Milan

    RECRUITING

    Milan, Italy

  • Santiago de Compostela University

    RECRUITING

    Santiago de Compostela, Spain

  • Second Department of Internal Medicine, Medical School, National and Kapodistrian University of Athens, Attikon University Hospital

    RECRUITING

    Athens, Greece

  • Stoffwechselzentrum friendlydocs

    RECRUITING

    Sankt Gallen, Switzerland

  • Tor Vergata University - Policlinico of Tor Vergata

    RECRUITING

    Roma, Italy

  • Universita del piemonte Orientale

    RECRUITING

    Novara, Italy

  • University Medical Center Ljubljana - Clinical Institute of Medical Genetics

    RECRUITING

    Ljubljana, Slovenia

  • University of Cambridge Metabolic Research Laboratories

    RECRUITING

    Cambridge, United Kingdom

  • University of Szeged, Department of Internal Medicine

    RECRUITING

    Szeged, Hungary

More trials for these conditions

Other studies related to the condition(s) this trial covers.