New study tracks muscle decline in rare disease to guide future treatments
NCT ID NCT03842878
First seen Jun 24, 2026 · Last updated Jun 27, 2026 · Updated 2 times
Summary
This study followed 52 people with limb-girdle muscular dystrophy 2I (LGMD2I) for up to two years to learn more about how the disease changes over time. Researchers measured walking ability, muscle strength, heart function, and daily activities. The goal was to better understand the disease's natural course, which can help design future treatment trials.
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the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Conditions
The condition(s) this trial relates to.
As listed by the trial registrant
The condition terms exactly as the trial's registrant entered them.
Contacts and locations
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Locations
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Dr Tanya Stojkovic
Paris, 75013, France
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Pr John Vissing
Copenhagen, DK-2100, Denmark
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Pr Volker Straub
Newcastle, NE1 3BZ, United Kingdom