52 patients tracked for 2 years to map rare muscle disease
NCT ID NCT03842878
First seen Feb 17, 2026 · Last updated May 08, 2026 · Updated 14 times
Summary
This study followed 52 people with Limb-Girdle Muscular Dystrophy 2I (LGMD2I) for up to 2 years to learn how the disease naturally progresses. Participants completed walking tests, muscle strength measurements, and heart exams. The goal was to gather detailed information to help design future treatments, not to test a new therapy.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Dr Tanya Stojkovic
Paris, 75013, France
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Pr John Vissing
Copenhagen, DK-2100, Denmark
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Pr Volker Straub
Newcastle, NE1 3BZ, United Kingdom
Conditions
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