Landmark study maps the course of a debilitating muscle disease
NCT ID NCT03981289
Summary
This study aimed to define the best ways to measure how Limb Girdle Muscular Dystrophy (LGMD) changes over time. It followed 116 people with specific genetic forms of LGMD, tracking their mobility, strength, and daily function. The goal was to create a clear roadmap of the disease to help speed up the development of future treatments.
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Contacts and locations
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Locations
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John Walton Muscular Dystrophy Research Centre (Newcastle Upon Tyne)
Newcastle, United Kingdom
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Kennedy Krieger Institute
Baltimore, Maryland, 21205, United States
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Nationwide Children's Hospital
Columbus, Ohio, 43205, United States
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The University of Colorado Anschutz Medical Campus
Aurora, Colorado, 80045, United States
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University of California Irvine
Irvine, California, 92697, United States
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University of Iowa
Iowa City, Iowa, 52242, United States
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University of Kansas Medical Center
Kansas City, Kansas, 66160, United States
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University of Minnesota
Minneapolis, Minnesota, 55455, United States
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Virginia Commonwealth University
Richmond, Virginia, 23298, United States
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Washington University School of Medicine
St Louis, Missouri, 63110, United States
Conditions
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