Can a Two-Drug combo tame a rare nerve and blood disorder?

NCT ID NCT01639898

What the study statuses mean

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Recruitment status, easiest to join first

Recruiting now
This trial is taking on new participants right now.
Not yet recruiting
Registered, but not yet taking participants.
By invitation only
Not open to general applications. Only people the study team invites can take part.
Paused
Paused for now. It may or may not start again.
Ongoing
Running, but no longer taking on new participants.
Completed This study
The trial has finished. Results may not be published yet.
Stopped early
Stopped early, before it reached the end. That can be for many reasons, including safety.
Cancelled
Cancelled before anyone took part.

Expanded access (not trials)

Expanded access
Not a trial. This treatment can be requested outside a study, case by case, for people who qualify.
Expanded access (paused)
Not a trial. The treatment can normally be requested outside a study, but is unavailable right now.
Expanded access (ended)
Not a trial. The treatment could once be requested outside a study, but no longer can.
Approved
The treatment has been approved, so it is available normally rather than through this programme.

When the status isn't known

Details not published
The full record has not been published yet, so there is little to show here.
Status unknown
This status has not been confirmed recently, so it may be out of date.

First seen Aug 31, 2026 · Last updated Sep 01, 2026 · Updated 1 time

Summary

This phase II trial tests whether the combination of lenalidomide and dexamethasone can help people with POEMS syndrome, a rare blood disorder that damages nerves and causes other symptoms. Participants receive the drug combo either before local radiation or intensive treatment, or as the main therapy for nine cycles. The study also collects blood samples to look for markers that predict response and to better understand the disease.

What this could mean

Our plain-language read of the trial. This is informational only, not medical advice or a prediction.

Active substance
lenalidomide combined with dexamethasone
What this could lead to
If it works, this drug combination could offer a new treatment option for POEMS syndrome, a rare and serious blood disorder, potentially improving nerve function and other symptoms.
What could go wrong
This is a phase II trial with a small number of participants, so the results are not definitive. The treatment may not work for everyone, and lenalidomide can have side effects like blood clots, low blood counts, and infections.

This is an AI summary of the original study and may miss details. Read our disclaimer.

Study facts

What this study's own registry entry says, in plain language.

Phase

Phase 2

Tests whether the treatment actually works, and watches for side effects, in a larger group.

Participants

51 people

The number who actually took part.

Started

Jul 2012

Finished

Jul 2018

Lead sponsor

Other sponsor

The registry's catch-all category, for sponsors it does not file as a company, a government agency, or a research network.

Who can take part

This study's own entry requirements. Only the study team can say for certain whether you qualify.

Ages

18 years and older

Sex

Anyone

Healthy volunteers

Not accepted

This study is not open to healthy volunteers. The entry requirements below say who it is open to.

Show the full entry requirements

Copied word for word from the study's registry entry, so the wording is the study team's rather than ours.

Inclusion Criteria: * Patients suffering from POEMS syndrome (Mayo Clinic criteria) * Patients with a localised disease who can be treated with radiation and those with a disseminated disease and who can be treated intensively will be included in Group 1, all other patients will be included in Group 2. * Patients aged of 18 or more * Patients who do not show uncontrolled thrombosis * Patients who have been duly informed and who have signed a consent form. * Patients must respect all the lenalidomide Pregnancy Prevention Program (PPP) requirements described in appendix of the protocol. * Patients registered with the French National Health System. Exclusion Criteria: * Women who are pregnant, or suspected to be pregnant or breastfeeding * Pathology not linked with POEMS, contraindicating one of the studied drugs * Patients suffering from a deficiency which does not allow them full understanding of the trial requirements and which could compromise proper consent from the patient and/or observance of the protocol and continuous participation in the trial. * Prior history of malignancy other than POEMS syndrome or active other cancer or other serious illness. * Any contraindication to Revlimid® or to one of its excipient. * Patient with clearance creatinine \< 30mL/min. * Hepatic insufficiency * Patient with Absolute Neutrophil count (ANC) \< 1,0 x 109/L * Patient with platelet count \< 75 x 109/L * Use of any other experimental drug or therapy within 28 days of baseline * Known hypersensitivity to thalidomide * Instable, clinically significant ECG findings * Known positive for HIV, or active infectious hepatitis, type A, B or C * Patients under protection of a legal order.

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Conditions

The condition(s) this trial relates to.

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Locations

  • CHU d'Angers

    Angers, 49933, France

  • CHU de Caen

    Caen, 14000, France

  • CHU de Lille

    Lille, 59037, France

  • CHU de Limoges

    Limoges, 87042, France

  • CHU de Nantes

    Nantes, 44093, France

  • CHU de Toulouse

    Toulouse, 31059, France

  • Centre Léon Bérard

    Lyon, 69373, France

  • Hospices Civil de Lyon

    Lyon, 69000, France

  • Hôpital Necker

    Paris, 75743, France

  • Hôpital Saint-Louis

    Paris, 75010, France

  • Pitié Salpétrière

    Paris, 75013, France

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