Huntington disease study goes remote: 600 participants to track health from home

NCT ID NCT06475898

First seen Nov 01, 2025 · Last updated May 23, 2026 · Updated 28 times

Summary

This study aims to collect health information from 600 people with Huntington disease (or those at risk) over 24 months using online surveys and remote tools. The goal is to understand how the disease progresses and identify factors that affect its speed. Participants can join from home, making it easier for many to take part.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Huntington Study Group

    RECRUITING

    Rochester, New York, 14618, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.