Researchers launch Long-Term study to unravel rare KSHV-Driven disease
NCT ID NCT04968288
First seen Jan 06, 2026 · Last updated Apr 28, 2026 · Updated 15 times
Summary
This study follows 195 adults with KSHV-associated multicentric Castleman disease (MCD) to understand how the disease behaves over time. Researchers will track symptoms, treatment responses, and survival. Participants receive standard care and regular check-ups for up to 3 years. The goal is to improve future treatments for this rare and serious condition.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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National Institutes of Health Clinical Center
RECRUITINGBethesda, Maryland, 20892, United States
Contact Phone: •••-•••-••••
Conditions
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