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Scientists launch massive effort to understand rare lung diseases

NCT ID NCT03041623

Ongoing Knowledge-focused Sponsor: North East Japan Study Group Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This registry is following 867 people with idiopathic interstitial pneumonias (IIPs), a group of rare lung diseases. The goal is to learn how these diseases behave over time, how they are diagnosed, and what treatments doctors currently use. No new drugs or procedures are being tested—this study simply observes and records information to improve future care.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

What this could lead to

If successful, this registry could provide a clearer picture of how these rare lung diseases progress, helping doctors diagnose and manage them better in the future.

What could go wrong

This is an observational registry, not a treatment trial. It collects data but does not test any new therapy, so it won't directly lead to a cure or new drug.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Conditions

The condition(s) this trial relates to.

idiopathic interstitial pneumonia idiopathic pulmonary fibrosis

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

IDIOPATHIC INTERSTITIAL PNEUMONIA

Contacts and locations

Locations

  • Asahikawa Medical University Hospital

    Asahikawa, Hokkaido, 078-8510, Japan

  • Aso Iizuka Hospital

    Iizuka, Fukuoka, 820-8505, Japan

  • Chiba University Hospital

    Chiba, Chiba, 260-8677, Japan

  • Dokkyo Medical University Hospital

    Tochigi, Tochigi, 321-0293, Japan

  • Dokkyo Medical University Koshigaya Hospital

    Koshigaya, Saitama, 343-8555, Japan

  • Ehime Prefectural Central Hospital

    Matsuyama, Ehime, 790-0024, Japan

  • Fujita Health University Hospital

    Toyoake, Aichi-ken, 470-1192, Japan

  • Fukuoka University Chikushi Hospital

    Chikushino-shi, Fukuoka, 818-8502, Japan

  • Fukuoka University Hospital

    Fukuoka, Fukuoka, 814-0180, Japan

  • Fukushima Medical University Hospital

    Fukushima, Fukushima, 960-1295, Japan

  • Gunma University Hospital

    Maebashi, Gunma, 371-8511, Japan

  • Hamamatsu Rosai Hospital

    Hamamatsu, Shizuoka, 430-8525, Japan

  • Hamamatsu University Hospital

    Hamamatsu, Shizuoka, 431-3126, Japan

  • Haruhi Respiratory Medical Hospital

    Kiyosu, Aichi-ken, 452-0962, Japan

  • Hirosaki University Hospital

    Hirosaki, Aomori, 036-8562, Japan

  • Hiroshima Prefectural Hospital

    Hiroshima, Hiroshima, 734-8530, Japan

  • Hiroshima University Hospital

    Hiroshima, Hiroshima, 734-8551, Japan

  • Ibarakihigashi National Hospital

    Naka, Ibaraki, 319-1113, Japan

  • Iwate Prefectural Central Hospital

    Morioka, Iwate, 020-0066, Japan

  • JR Tokyo General Hospital

    Tokyo, Tokyo, 151-8528, Japan

  • Japanese Red Cross Ise Hospital

    Ise, Mie-ken, 516-8512, Japan

  • Japanese Red Cross Medical Center

    Tokyo, Tokyo, 150-8935, Japan

  • Japanese Red Cross Saitama Hospital

    Saitama, Saitama, 330-8553, Japan

  • Jichi Medical University

    Shimotsuke, Tochigi, 329-0498, Japan

  • Juntendo University Hospital

    Tokyo, Tokyo, 113-8431, Japan

  • Kagoshima University Hospital

    Kagoshima, Kagoshima-ken, 890-8520, Japan

  • Kameda Medical Center

    Kamogawa, Chiba, 296-8602, Japan

  • Kanagawa Cardiovascular and Respiratory Center

    Yokohama, Kanagawa, 236-0051, Japan

  • Kanazawa University Hospital

    Kanazawa, Ishikawa-ken, 920-8641, Japan

  • Kinki University Hospital

    Sayama, Osaka, 589-8511, Japan

  • Kobe City Medical Center General Hospital

    Kobe, Hyōgo, 650-0047, Japan

  • Kobe City Medical Center West Hospital

    Kobe, Hyōgo, 653-0013, Japan

  • Kochi medical School Hospital

    Nankoku, Kochi, 783-8505, Japan

  • Kumamoto University Hospital

    Kumamoto, Kumamoto, 860-8556, Japan

  • Kurashiki Central Hospital

    Kurashiki, Okayama-ken, 710-8602, Japan

  • Kurume University Hospital

    Kurume, Fukuoka, 830-0011, Japan

  • Kyorin University Hospital

    Mitaka, Tokyo, 181-8611, Japan

  • Kyoto University Hospital

    Kyoto, Kyoto, 606-8507, Japan

  • Kyushu University Hospital.

    Fukuoka, Fukuoka, 812-8582, Japan

  • Matsuzaka City Hospital

    Matsuzaka, Mie-ken, 515-8544, Japan

  • NTT Medical Center Tokyo

    Tokyo, Tokyo, 141-8625, Japan

  • Nagasaki University Hospital

    Nagasaki, Nagasaki, 852-8510, Japan

  • Nagoya City University Hospital

    Nagoya, Aichi-ken, 467-8601, Japan

  • Nagoya University Hospital

    Nagoya, Aichi-ken, 466-8560, Japan

  • National Center for Global Health and Medicine

    Tokyo, Tokyo, 162-8655, Japan

  • National Hospital Organization Chiba-East-Hospital

    Chiba, Chiba, 260-8712, Japan

  • National Hospital Organization Himeji Medical Center

    Himeji, Hyōgo, 670-8520, Japan

  • National Hospital Organization Kinki-chuo Chest Medical Center

    Sakai, Osaka, 591-8555, Japan

  • National Hospital Organization Matsue Medical Center

    Matsue, Shimane, 690-8556, Japan

  • National Hospital Organization Minami-Okayama Medical Center

    Okayama, Okayama-ken, 701-0304, Japan

  • National Hospital Organization Tokyo Medical Center

    Tokyo, Tokyo, 152-8902, Japan

  • National Hospital Organization Tokyo National Hospital

    Kiyose, Tokyo, 204-8585, Japan

  • National Hospital Organization Yamaguchi-Ube Medical Center

    Ube, Yamaguchi, 755-0241, Japan

  • Nihon University Itabashi Hospital

    Tokyo, Tokyo, 173-8610, Japan

  • Niigata University Medical and Dental Hospital

    Niigata, Niigata, 951-8510, Japan

  • Nippon Medical School Hospital

    Tokyo, Tokyo, 113-8603, Japan

  • Ogaki Municipal Hospital

    Ōgaki, Gifu, 503-8502, Japan

  • Okinawa Chubu Hospital

    Uruma, Okinawa, 904-2293, Japan

  • Saiseikai Kumamoto Hospital

    Kumamoto, Kumamoto, 861-4193, Japan

  • Saku Central Hospital Advanced Care Center

    Saku, Nagano, 385-0051, Japan

  • Sapporo Medical University Hospital

    Sapporo, Hokkaido, 060-8543, Japan

  • Seirei Hamamatsu General Hospital

    Hamamatsu, Shizuoka, 430-8558, Japan

  • Seirei Mikatahara General Hospital

    Hamamatsu, Shizuoka, 433-8558, Japan

  • Sendai Kousei Hospital

    Sendai, Miyagi, 980-0873, Japan

  • Shiga University of Medical Science Hospital

    Ōtsu, Shiga, 520-2192, Japan

  • Shimane University Hospital

    Izumo, Shimane, 693-8501, Japan

  • Shinshu University Hospital

    Matsumoto, Nagano, 390-8621, Japan

  • Showa University Fujigaoka Hospital

    Yokohama, Kanagawa, 227-8501, Japan

  • St. Marianna University School of Medicine Hospital

    Kawasaki, Kanagawa, 216-8511, Japan

  • Suwa Central Hospital

    Chino, Nagano, 391-8503, Japan

  • Teikyo University Hospital

    Tokyo, Tokyo, 173-8605, Japan

  • Tenri Hospital

    Tenri, Nara, 632-8552, Japan

  • The Jikei University Hospital

    Tokyo, Tokyo, 105-8471, Japan

  • Toho University Omori Medical Center

    Tokyo, Tokyo, 143-8541, Japan

  • Tohoku Medical and Pharmaceutical University Hospital

    Sendai, Miyagi, 983-8512, Japan

  • Tokai University Hospital

    Isehara, Kanagawa, 259-1193, Japan

  • Tokushima University Hospital

    Tokushima, Tokushima, 770-8053, Japan

  • Tokyo Medical and Dental University

    Tokyo, Tokyo, 113-8519, Japan

  • Tokyo University Hospital

    Tokyo, Tokyo, 113-8655, Japan

  • Toranomon Hospital

    Tokyo, Tokyo, 105-8470, Japan

  • Tosei General Hospital

    Seto, Aichi-ken, 489-8642, Japan

  • Tottori University Hospital

    Yonago, Tottori, 683-0853, Japan

  • Toyama University Hospital

    Toyama, Toyama, 930-0194, Japan

  • University of Fukui Hospital

    Yoshida, Fukui, 910-1193, Japan

  • University of Occupational and Environmental Health Japan

    Kitakyushu, Hukuoka, 807-8555, Japan

  • Yamagata City Hospital Saiseikan

    Yamagata, Yamagata, 990-8533, Japan