Groundwork laid for future batten disease treatments through national patient registry
NCT ID NCT06844877
Summary
This study aims to create a national registry for patients with Neuronal Ceroid Lipofuscinosis (NCL), also known as Batten disease. It will collect detailed health information from about 50 patients over time to better understand how this rare neurological disease progresses. The data will help researchers design future clinical trials and develop better ways to measure treatment effectiveness.
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Contacts and locations
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Email: •••••@•••••
Locations
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IRCCS Fondazione Stella Maris
RECRUITINGPisa, 56128, Italy
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Contact
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Conditions
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