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Rare nerve disorder study aims to build better tools for patients

NCT ID NCT03918421

Recruiting now Knowledge-focused Sponsor: Hospices Civils de Lyon Source: ClinicalTrials.gov ↗

First seen Jan 25, 2026 · Last updated May 08, 2026 · Updated 16 times

Summary

This study is gathering detailed information from 45 adults with a rare nerve condition called IgM-anti-MAG peripheral neuropathy. Researchers want to describe the different types of the disease, how it changes over time, and how patients respond to treatments. The goal is to create a better questionnaire to measure how the condition affects daily life, which could help design future clinical trials.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Centre de référence NNERf

    RECRUITING

    Le Kremlin-Bicêtre, 94275, France

    Contact Email: •••••@•••••

    Contact

  • Hospices Civils de Lyon Service Neurologie C, Pathologies Neuromusculaires, Unité 302

    RECRUITING

    Bron, 69500, France

    Contact

    Contact

Conditions

Explore the condition pages connected to this study.

IMMUNOGLOBIN M ANTI-MYELIN-ASSOCIATED-GLYCOPROTEIN PERIPHERAL NEUROPATHY