New study reveals hidden clues to breathing trouble in muscle disease

NCT ID NCT03764150

First seen Dec 08, 2025 · Last updated May 13, 2026 · Updated 23 times

Summary

This study followed 113 adults with myotonic dystrophy (Steinert disease) for 5 years to find out why some develop low oxygen levels (hypoventilation). Researchers measured lung function, sleepiness, fatigue, and thinking skills. The goal was to better understand the breathing patterns in this condition, not to test a new treatment.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for MYOTONIC DYSTROPHY, STEINERT are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Contacts and locations

Locations

  • Ap-Hp Hu Paris Site Raymond Poincare

    Garches, France

  • Ap-Hp Hu Pitie Salpetriere

    Paris, France

  • Centre Hospitalier Regional D' Angers

    Angers, France

  • Chu Montpellier

    Montpellier, France

  • Chu de Nantes :Site Hôtel-Dieu- Hme - Nantes 1

    Nantes, France

  • Hôpital Calmette, CHRU

    Lille, France

Conditions

Explore the condition pages connected to this study.