Scientists launch major online hunt for Huntington's disease clues

NCT ID NCT06475898

Summary

This study aims to better understand how Huntington's Disease progresses by collecting health information directly from patients online over two years. It will enroll 600 adults in the US who have been diagnosed with HD or carry the gene but don't yet have symptoms. Participants will use their own devices to complete surveys, helping researchers learn what factors affect the speed of the disease.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Huntington Study Group

    RECRUITING

    Rochester, New York, 14618, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.