Researchers track rare spinal disease to uncover clues

NCT ID NCT00001778

First seen Nov 01, 2025 · Last updated May 13, 2026 · Updated 27 times

Summary

This study follows people with HTLV-I-associated myelopathy (HAM/TSP), a rare spinal cord disorder, to learn how the disease changes over time. Up to 750 participants, including infected individuals, family members, and healthy volunteers, will provide blood and spinal fluid samples. The goal is to better understand the virus, immune system response, and genetic factors involved.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for HTLV-I INFECTION are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • National Institutes of Health Clinical Center

    RECRUITING

    Bethesda, Maryland, 20892, United States

Conditions

Explore the condition pages connected to this study.