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Home test for rare metabolic disease: will patients use it?

NCT ID NCT06953505

Recruiting now Knowledge-focused Sponsor: Sequitur Health Corp. Source: ClinicalTrials.gov ↗

First seen Jun 27, 2026 · Last updated Jun 27, 2026

Summary

This study looks at whether people with certain rare metabolic disorders that cause high ammonia levels will measure their ammonia at home every day. About 30 participants will use a special device to check their ammonia, along with temperature, heart rate, and blood oxygen. They will also fill out a short daily survey and attend two clinic visits. The goal is to see if daily home monitoring is practical and acceptable for patients.

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Conditions

The condition(s) this trial relates to.

inborn organic aciduria inherited fatty acid metabolism disorder metabolic disease urea cycle disorder

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

AMMONIA; METABOLIC DISORDER FATTY ACID OXIDATION DISORDER ORGANIC ACIDEMIAS UREA CYCLE DISORDERS

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Oregon Health & Science University

    RECRUITING

    Portland, Oregon, 97239-3098, United States

    Contact

    Contact Phone: •••-•••-••••

    Contact

    Contact