New HLH registry aims to unlock secrets of rare immune disease
NCT ID NCT05277272
First seen Jan 10, 2026 · Last updated May 24, 2026 · Updated 23 times
Summary
This study is a registry that collects information from 200 people with hemophagocytic lymphohistiocytosis (HLH), a rare immune condition. Researchers will track how the disease is diagnosed, what treatments are used, and what happens to patients over time. The goal is to learn more about the disease to improve future care.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Cincinnati Children's Hospital Medical Center
RECRUITINGCincinnati, Ohio, 45229, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Conditions
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