New study to measure daily life impact of rare bleeding disorder in kids
NCT ID NCT07474428
First seen Mar 20, 2026 · Last updated May 01, 2026 · Updated 6 times
Summary
This study looks at how Hereditary Hemorrhagic Telangiectasia (HHT) affects the quality of life of children and young adults aged 2 to 25. Participants will fill out questionnaires about their physical, emotional, and social well-being. Researchers will also review medical records to see how severe the disease is and how often patients need medical care. The goal is to better understand the challenges these patients face.
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This is a summary of
the original study
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Study contacts
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Contact
Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Cincinnati Children's Hospital Medical Center
Cincinnati, Ohio, 45221, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Conditions
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