New study to measure daily life impact of rare bleeding disorder in youth
Knowledge-focused
Not yet recruiting
This study looks at how hereditary hemorrhagic telangiectasia (HHT) affects the quality of life of children and young adults aged 2 to 25. Participants will fill out questionnaires about their physical, emotional, and social well-being. Researchers will also review medical record…
Sponsor: Ashley Nelson • Aim: Knowledge-focused
Last updated Jun 27, 2026 11:02 UTC