Researchers map the hidden toll of a rare bleeding disorder
NCT ID NCT07191639
Summary
This study aimed to understand how all the different symptoms of Hereditary Hemorrhagic Telangiectasia (HHT) affect patients' quality of life. Researchers surveyed 185 adult patients with HHT using a specialized questionnaire developed for this condition. The goal was to measure the impact of symptoms like nosebleeds on daily activities, social life, and emotional well-being to better understand patient experiences.
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Contacts and locations
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Locations
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Hôpital Femme-Mère-Enfant - Centre de référence pour la maladie de Rendu-Osler
Bron, 69500, France
Conditions
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