Study reveals why young adults with hemophilia struggle with healthcare

NCT ID NCT07418827

Summary

This study follows 75 young adults with severe hemophilia to understand how their healthcare management changes as they transition from pediatric to adult care. Researchers will track whether they keep up with doctor visits, treatments, and follow-up care, and how this affects their health and quality of life. The goal is to identify what helps or hinders successful transition to managing their own healthcare as adults.

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for HAEMOPHILIA are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • AP-HP (Hôpital Kremlin Bicetre)

    Paris, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • AP-HP (Hôpital NECKER)

    Paris, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Assistance publique - Hôpitaux de Marseille

    Marseille, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CH Annecy - St Julien

    Annecy, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CH Montmorency

    Montmorency, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CH Versailles

    Versailles, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CHRU de Lille

    Lille, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CHU Clermont-Ferrand

    Clermont-Ferrand, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CHU La Reunion

    Saint-Denis, La Réunion, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CHU Limoges

    Limoges, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CHU Montpellier

    Montpellier, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CHU Nantes

    Nantes, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CHU Reims

    Reims, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CHU St Etienne

    Saint-Etienne, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CHU Strasbourg

    Strasbourg, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CHU Toulouse

    Toulouse, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CHU de Rennes

    Rennes, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • CHU de Rouen

    Rouen, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Centre hospitalier Métropole Savoie

    Chambéry, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Chu de Bordeaux

    Bordeaux, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Chu de Caen

    Caen, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Chu de Dijon

    Dijon, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Chu de Grenoble

    Grenoble, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Chu de Nancy

    Nancy, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

  • Hospices Civils de Lyon

    Lyon, France

    Contact Phone: •••-•••-•••• Email: •••••@•••••

Conditions

Explore the condition pages connected to this study.