New hope for kids with rare bleeding disorder
NCT ID NCT01467427
Summary
This trial tested a new, long-acting medication (N9-GP) to control bleeding in children with severe hemophilia B. It involved 25 boys under 13 who had previously used other treatments. The main goals were to see if the drug was safe, how well it prevented and treated bleeds, and how long it lasted in the body.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes NO responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Contacts and locations
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Locations
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Ap-Hp-Hopital Necker-1
Paris, 75015, France
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Ap-Hp-Hopital de Bicetre-1
Le Kremlin-Bicêtre, 94275, France
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Augusta University
Augusta, Georgia, 30912, United States
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Basingstoke & North Hampshire Hospital - Centre for Haemophilia, Haemostasis and Thrombosis
Basingstoke, RG24 9NA, United Kingdom
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Birmingham Children's Hospital
Birmingham, B4 6NH, United Kingdom
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Children's Hospital Los Angeles - Endocrinology
Los Angeles, California, 90027, United States
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Children's Hospital of Michigan
Detroit, Michigan, 48201, United States
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Children's Hospitals And Clinics Of Minnesota
Minneapolis, Minnesota, 55404, United States
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Children's Hosptl Philadelphia
Philadelphia, Pennsylvania, 19104, United States
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Children's Medical Center_Dallas
Dallas, Texas, 75235, United States
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Childrens National Medical Ctr
Washington D.C., District of Columbia, 20010-2978, United States
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Clinical Hospital Centre Split, Firule, Paediatric Haem. Dpt
Split, 21 000, Croatia
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Coagulation Research Center
Duisburg, 47051, Germany
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Colorado Hemophilia & Thrombosis Center
Aurora, Colorado, 80045, United States
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Dayton Children Hemostati Ctr
Dayton, Ohio, 45404, United States
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Emory University_Atlanta_1
Atlanta, Georgia, 30322, United States
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Hemorio-Fundarj
Rio de Janeiro, 20211-030, Brazil
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Hospital das Clínicas da Faculdade de Medicina da USP
São Paulo, São Paulo, 05403-000, Brazil
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Hôpital de la Timone
Marseille, 13385, France
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Istituto di Medicina Int. A. Bianchi Bonomi Univ. Milano
Milan, MI, 20124, Italy
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John Radcliffe Hospital
Oxford, OX3 9DU, United Kingdom
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Johns Hopkins University_Baltimore_3
Baltimore, Maryland, 21205, United States
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Leicester Royal Infirmary
Leicester, LE1 5WW, United Kingdom
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Leicester Royal Infirmary - Haemostasis & Thrombosis Unit
Leicester, LE1 5WW, United Kingdom
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Maimonides Medical Center
Brooklyn, New York, 11220, United States
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Medizinische Hochschule Hannover - Pädiatrische Hämato-, Onko- und Hämostasiologie
Hanover, 30625, Germany
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Mount Sinai Medical Center
New York, New York, 10029, United States
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National Blood Centre
Kuala Lumpur, 50400, Malaysia
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National Taiwan University Children's Hospital
Taipei, 100, Taiwan
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Nationwide Children's Hospital
Columbus, Ohio, 43205, United States
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Necmettin Erbakan University Pediatric Hematology
Konya, 42090, Turkey (Türkiye)
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Nucleo de Pesquisa Instituto Pele Pequeno Principe
Curitiba, Paraná, 80250-060, Brazil
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Ogikubo Hospital_Pediatries & Blood
Tokyo, 167-0035, Japan
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Rutgers-Robert Wood Johnson Medical School
New Brunswick, New Jersey, 08901, United States
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Shizuoka Children's Hospital, Hematology-Oncology
Shizuoka, 420-8660, Japan
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St Thomas' Hospital
London, SE1 7EH, United Kingdom
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St Thomas' Hospital - Haemostasis and Thrombosis Centre
London, SE1 7EH, United Kingdom
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St. Marianna University School of Medicine Hospital_Pediatrics
Kanagawa, 216-8511, Japan
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Texas Children's Hospital_Houston
Houston, Texas, 77030, United States
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The Children's Mercy Hospital
Kansas City, Missouri, 64108-4619, United States
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The Hospital for Sick Children
Toronto, Ontario, M5G 1X8, Canada
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UC Davis Medical Center
Sacramento, California, 95817, United States
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Univ Hosp Cleveland Med Ctr
Cleveland, Ohio, 44106, United States
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Univ Oklahoma Sci Ctr OK City
Oklahoma City, Oklahoma, 73104, United States
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Univ TX Hlth Sci Ctr Houston
Houston, Texas, 77030, United States
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Univ of NE Med Center_Omaha
Omaha, Nebraska, 68198, United States
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Universidade Estadual de Campinas
Campinas, São Paulo, 13081-970, Brazil
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University Of Iowa
Iowa City, Iowa, 52242, United States
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University Of Louisville_Louisville_0
Louisville, Kentucky, 40202, United States
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University of Miami Hospital & Clinics
Miami, Florida, 33136, United States
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Vanderbilt Hemostasis Thrombosis Clinic
Nashville, Tennessee, 37232, United States
Conditions
Explore the condition pages connected to this study.