Tracking growth and health in kids with rare genetic condition
NCT ID NCT05308927
Summary
This study is creating a French registry to collect information on children with Noonan Syndrome who are being treated with Norditropin®, a growth hormone. It aims to track their long-term growth, monitor safety, and understand how treatment affects their quality of life. The study is observational, meaning it collects data from children already receiving this standard treatment, without changing their care.
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Contacts and locations
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Locations
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Ap-Hp-Hopital de Bicetre-2
Le Kremlin-Bicêtre, 94275, France
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Centre Hospitalier Universitaire D'Angers-2
Angers, 49033, France
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Hopital Des Enfants-2
Toulouse, 31059, France
Conditions
Explore the condition pages connected to this study.