Massive DNA hunt for clues behind NF1 skin tumors

NCT ID NCT04941027

First seen Jan 08, 2026 · Last updated May 08, 2026 · Updated 17 times

Summary

This study created a large genetic database from over 1,000 adults with neurofibromatosis type 1 (NF1) to find DNA differences that explain why skin tumors vary so much between patients. Researchers collected blood or saliva samples and medical information to look for genetic variants linked to tumor development. The goal is to better understand NF1 and eventually personalize care.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Locations

  • Johns Hopkins University School of Medicine

    Baltimore, California, 21218, United States

  • Stanford University

    Redwood City, California, 94063, United States

Conditions

Explore the condition pages connected to this study.