Scientists track genetic epilepsy to speed up future drug trials

NCT ID NCT07413211

First seen Feb 20, 2026 · Last updated Apr 30, 2026 · Updated 8 times

Summary

This study follows children and adults with genetic developmental and epileptic encephalopathy (DEE) for up to 10 years. Researchers will track development, seizures, and quality of life through in-person visits, virtual check-ins, or online surveys. The goal is to better understand the disease and prepare for future clinical trials of new treatments.

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This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

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Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • Weill Cornell Medicine

    RECRUITING

    New York, New York, 10021, United States

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact Phone: •••-•••-•••• Email: •••••@•••••

    Contact

Conditions

Explore the condition pages connected to this study.