Massive study tracks rare epilepsy disorders to speed up future treatments
NCT ID NCT07413211
First seen Feb 20, 2026 · Last updated Apr 25, 2026 · Updated 7 times
Summary
This study follows over 22,000 children and adults with genetic developmental and epileptic encephalopathy (DEE) to learn how the disease changes over time. Participants join in-person visits, virtual visits, or online surveys. No treatments are tested; the goal is to gather data that will help design future clinical trials.
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Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.
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Study contacts
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
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Contact
Phone: •••-•••-•••• Email: •••••@•••••
Locations
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Weill Cornell Medicine
RECRUITINGNew York, New York, 10021, United States
Contact Phone: •••-•••-•••• Email: •••••@•••••
Contact Phone: •••-•••-•••• Email: •••••@•••••
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Conditions
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