One-Time gene infusion aims to fight duchenne muscular dystrophy

NCT ID NCT07673809

First seen Jun 29, 2026 · Last updated Jun 30, 2026 · Updated 1 time

Summary

This study tests a single intravenous dose of a gene therapy called GNR-097 in boys aged 4 to 9 with Duchenne muscular dystrophy (DMD). The therapy uses a harmless virus to deliver a shortened version of the dystrophin gene, which is missing or faulty in DMD. The trial aims to see if the treatment is safe and whether it can improve muscle function. Some participants will receive a placebo first and may get the gene therapy later.

What this could mean

Our plain-language read of the trial. This is informational only — not medical advice or a prediction.

Active substance

GNR-097 (a gene therapy using a harmless virus to deliver a shortened dystrophin gene)

What this could lead to

If successful, this could provide a one-time treatment that helps boys with Duchenne muscular dystrophy maintain muscle strength and slow disease progression.

What could go wrong

This is an early-phase trial with only 32 participants, so results may not apply to everyone. There are risks of serious side effects like muscle inflammation, heart inflammation, or blood clotting issues.

Disclaimer Read more

This is a summary of the original study . Summaries may miss details or leave out important information. Before applying or accepting participation, make sure you have read and understood the full study. Curemydisease.com takes no responsibility whatsoever for anything missed, misunderstood, or acted upon as a result of our summary — we know it does not capture everything.

Get updates

Get notified about this study

Sign up to get updates when this study changes or when new studies for DUCHENNE MUSCULAR DYSTROPHY are added.

Our safety recommendation!

By submitting, you agree to our Terms of use

Conditions

The condition(s) this trial relates to.

Duchenne muscular dystrophy

As listed by the trial registrant

The condition terms exactly as the trial's registrant entered them.

Contacts and locations

Study contacts

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

  • Contact

    Phone: •••-•••-•••• Email: •••••@•••••

Locations

  • National Medical Research Center for Children

    RECRUITING

    Moscow, 119991, Russia

    Contact

  • Regional Children's Clinical Hospital

    RECRUITING

    Yekaterinburg, 620149, Russia

    Contact

  • Republican Scientific and Practical Center Mother and Child

    RECRUITING

    Minsk, 220053, Belarus

    Contact

  • Russian Children's Clinical Hospital

    RECRUITING

    Moscow, 117513, Russia

    Contact

  • Saint Petersburg State Pediatric Medical University

    RECRUITING

    Saint Petersburg, 194100, Russia

    Contact

  • Veltischev Research and Clinical Institute for Pediatrics and Pediatric Surgery of the Pirogov Russian National Research Medical University

    RECRUITING

    Moscow, 125412, Russia

    Contact